Sunday, September 28, 2014

Par For The Course

The weekend started off good, Jack and I took a nice walk around the block, which was the longest he's walked in weeks. 

Unfortunately, he's having a hard time keeping food/feedings down. 
We're trying baby food and rice as well as his normal feeding liquid, but either the current medicine is tearing up his stomach, or the feed is, or maybe his stomach is just frazzed out with everything it's been put through lately.

He had some chips tonight and a cracker, and we're about to start his feed (15 ml/hour), so hopefully that'll stay down and work our way back up to 30ml/hr. 

Today, I'm grateful for:
- Jack and Chase watching "Guardians Of The Galaxy", they both liked it,
- awesome walk with the little guy yesterday (we're preparing for trick or treating), we even visited our old friend, the light post littered with nails and screws from garage sale signs,
- Jack's joint and foot pain is gone! So other than the feeding pump sporadically beeping at night, Jack can sleep without pain through the night. This is a huge relief for all of us. 

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