After a long morning of waiting for the doctor to make her rounds, we got the thumbs up and were on the road by 1:30 headed home. One pitstop before we hit I80 -- McDonalds. Jack wanted sliced apples and french fries. The fries were fresh, piping hot and perfectly salted. He declared them the best french fries ever made.
It's good to be home! Jack is happy to see all 5 fish are still swimming around and gave his cat a "Hi fluffy, you miss me?" in a high, funny voice. We start Neupogen shots tonight before bed and he's already asked if we can call the doctor and ask if we can start tomorrow. Other than that, all is well. Stocked up on meds for a gurgly tummy and maintenance fluids for a few days. The fluids run 12 hours during the day, so no getting up in the middle of the night.
We have a follow up appointment on Tuesday and will start to talk/schedule more CT and MIBG scans, a surgery where they'll do another bone marrow biopsy, take out his port and do something fancy with his central line in preparation for the big transplant at UNMC early next month.
Today I'm thankful for:
- going home!
- coming home to a clean house - thank you Tibor and Chase!
- the forecast for Sunday - 52.
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